FAMILY & KIDS

Anna The Fighter: She Was Born With Harlequin Ichthyosis, But She Fought Her Way Through

Date December 17, 2018 17:53

We face problems on a daily basis. We need to deal with them and solve them, using them t grow as people and become stronger. Some of us need to learn as we go along, others are born fighters, and Anna Wilklow is one.

READ ALSO: Gravely Ill Baby Survives Against All Odds, Proving To Everyone That He's A Real Fighter

 
 
 
 
 
 
 
 
 
 
 
 
 
 
 

A post shared by Jennie (@harlequindiva) on

Anna was born with Harlequin Ichthyosis, and even though the doctors gave her no chance at life, Anna fought her way through and conquered.

Harlequin Ichthyosis is a severe genetic disorder that mainly affects the skin. A newborn infant with the condition is covered with plates of thick skin that crack and split apart.

 
 
 
 
 
 
 
 
 
 
 
 
 

We had a crazy busy day, but we wanted to say hi #harlequinichthyosis #babymodel #dramalama #imalittleextra

A post shared by Jennie (@harlequindiva) on

Anna’s mother, Jennie Wilklow, had a healthy pregnancy and everything was fine, until she gave birth early, at 34 weeks. It wasn't until the doctors told her Anna had a congenital disability that things fell apart.

“ Her skin hardened within seconds. After hardening, it began to split. Behind the curtain, I sensed their frantic panic. My husband’s silence scared me. He kept saying, ‘It’s bad.”

 
 
 
 
 
 
 
 
 
 
 
 
 

When I was told my baby wouldn’t live very long, I gasped for air a sharp pain stabbed inside my chest and I knew if she died I would feel that pain forever. A forever open wound left on your heart unable to heal itself because with every thought of that child the pain comes back just as strong as the first time. Coming home a month later with my baby defying all odds I should have been over the moon, but instead I was taken down like one swift kick to the back of the knees. Laying on the ground helpless and not having control of my thoughts or feelings. A babies cry would send stress pulsing through my body like it was directly injected into my veins. Everyone sounded distant and at night my legs moved constantly as I rocked back and forth trying to calm my body and mind. Even as I write this I feel that terrible feeling and then I also feel guilt. Guilt because she is alive and I wasted a month of her life trying to get the right medicine and get back to the me that I knew was deep inside, stuck inside. I was lucky because my support system pushed me to get help and shortly after getting the right help I got me back. I will never miss a chance to cherish every second of every day with her again. ♥️♥️♥️♥️♥️♥️♥️♥️♥️I I was asked by @ppdjourney to post my story to help #shatterthesilence and hopefully shatter the stigma around #postpartumdepression #gethelp #dontwastetime

A post shared by Jennie (@harlequindiva) on

According to Love What Matters, the doctors at the hospital were lost for words at Anna's condition as Harlequin Ichthyosis isn't a common defect.

Anna’s skin had been growing at a rapid rate in the womb and, once it hit the air, it dried up. Jennie and her husband were devastated, this wasn't what they had expected.

READ ALSO: Little Fighter: Born With Mystery Disease, 'Mermaid Girl' Shiloh Pepin Defied Doctors' Predictions For 10 Years

However, they looked into the eyes of their daughter and realized she had the most beautiful soul.

 
 
 
 
 
 
 
 
 
 
 
 
 
 
 

A post shared by Jennie (@harlequindiva) on

Anna was born a fighter, and she proved it in the NICU.

Then came another problem: wearing normal clothes made her skin dry up more, causing her pain. Jenni had to cover her in vaseline and a plastic bag.

Finally, they took little Anna home, but it became more difficult. This wasn't the plan for her little girl; Jennie had planned many outfits, but Anna could only wear fleece.

 
 
 
 
 
 
 
 
 
 
 
 
 
 
 

A post shared by Jennie (@harlequindiva) on

More challenging was dealing with people's reactions when they saw her baby. Thankfully, her friends and family all gathered together and offered their support. Then, Jennie met a woman who had lost two babies at one-month-old each, tthe same month Anna came home.

This made Jenni realize she should be grateful, and so she started looking at things differently. he would dress Anna in the most adorable fleece outfits and shower her with love.

 
 
 
 
 
 
 
 
 
 
 
 
 
 
 

A post shared by Jennie (@harlequindiva) on

Anna’s condition improved and she could eventually start wearing regular clothes. Jenni is very grateful for Anna and decided to open up about her daughter’s condition, creating an Instagram account for Anna's journey.

Everyone immediately fell in love with her, seeing the beauty that lies deep within. Her Instagram account has reached over 12,000 followers who are hooked on her cuteness.

 
 
 
 
 
 
 
 
 
 
 
 
 

When you have a bow that matches your pjs 😍 #bowaddict #alwaysreadytopose #harlequinichthyosis #littlelopersforlife

A post shared by Jennie (@harlequindiva) on

We are happy with Anna's progress. We wish her the very best in life and hope her inner beauty shines brightly for all to see.

READ ALSO: Little Boy Born With 'Butterfly Skin' Continues To Hold On To Faith And Inspire Many